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Our Group is affiliated with the DMRF. Click their logo on the left to go to their site. Our group is also affiliated with the NSDA. Click their logo on the right to go to their website.

Dystonia Support & Advocacy Group of San Diego County
 

Hello and welcome to the Dystonia Support Group of San Diego County's Web Site. This site will tell you more about our group, upcoming meetings, symposiums, and current events. To navigate this site the links are in categories to help to make it more organized. We hope you enjoy our web site made possible by Ryan Murphy.

 

Visit us on Facebook at www.facebook.com/dystoniaofsandiego
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For the latest news and information please click here to go to our announcements page. To view Dr. Fatta Nahab's PowerPoint presentation from our meeting on 4/29/17, please click HERE

SEPTEMBER IS DYSTONIA AWARENESS MONTH AND OUR GROUP WILL BE HOLDING A SPECIAL ALL-DAY EVENT FROM 11 A.M.-11 P.M. ON THURSDAY, 9/27/18 AT BJ'S RESTAURANT IN GROSSMONT CENTER, 5500 GROSSMONT DR., LA MESA, CA 91942. PHONE: 619-589-7222. BJ'S WILL DONATE 20% OF THE FOOD AND BEVERAGE PURCHASES (NOT VALID FOR ALCOHOL OR HAPPY HOUR SPECIALS) TO OUR ORGANZATION WHEN YOU PRESENT A PRINTED COPY OF THIS FLYER TO YOUR SERVER. CLICK HERE FOR FLYER. VALID FOR DINE-IN OR TAKE-OUT ON THAT DAY ONLY AT THAT LOCATION ONLY. SO PLEASE SPREAD THE WORD AND INVITE AS MANY PEOPLE AS POSSIBLE TO MAKE THIS A SUCCESS. BJ'S HAS A GREAT VARIETY OF TASTY FOOD. TO CHECK OUT THE MENU, VISIT https://www.bjsrestaurants.com/menu

**SAVE THE DATE! THE DMRF IS HOSTING SAN DIEGO'S FIRST-EVER DYSTONIA DAY AT THE SAN DIEGO ZOO ON SATURDAY, 11/3/18. THIS WILL BE GREAT FOR CREATING MORE VISIBILITY FOR DYSTONIA & ALSO RAISING FUNDS FOR DMRF PROGRAMS. ALL ARE INVITED TO PARTICIPATE AND WE WANT TO GET LOTS OF PEOPLE IN THE COMMUNITY INVOLVED IN THIS EVENT! MARK YOUR CALENDARS. $45 FOR ADULTS; $35 FOR CHILDREN 11 YEARS & UNDER. TEAMS OF 10 OR MORE WILL RECEIVE CUSTOMIZED T-SHIRTS BUT YOU MUST REGISTER BY 10/22. WE ENCOURAGE YOU TO FORM YOUR OWN TEAMS. IF YOU DON'T HAVE YOUR OWN TEAM AND WISH TO BE PART OF MARTHA'S TEAM, WHEN YOU SIGN-UP ONLINE INDICATE "DYSTONIA DYNAMOS" AS YOUR TEAM. FOR MORE DETAILS AND TO REGISTER CLICK HERE WE ARE ALSO IN NEED OF SPONSORS AND DONATIONS SO PLEASE CONTACT EITHER MARTHA OR THE DMRF FOR MORE INFORMATION. THANKS!

DATE: SAT., SEPT. 15, 2018 TIME: 1:00-3:00 P.M.

SPEAKER: STEVEN HICKMAN, Ph.D. is a Licensed Clinical Psychologist and Founding Director of the UC San Diego Center for Mindfulness. He is an Associate Clinical Professor in the UCSD Department of Family Medicine and Public Health. Dr. Hickman is also the Executive Director of the non-profit Center for Mindful Self-Compassion, which is dedicated to disseminating the practice of self-compassion throughout the world. Steven is a Certified teacher of Mindfulness-Based Stress Reduction and Mindful Self-Compassion, and is a teacher trainer for both programs. His area of specialty is the training of teachers of mindfulness and self-compassion and he founded the UC San Diego Mindfulness-Based Professional Training Institute dedicated to providing professional training and certification in the full spectrum of mindfulness-based programs. He is married and has three young adult children, affording him ample opportunities to practice what he teaches.

TOPIC: MINDFULNESS, SELF-COMPASSION & YOUR OWN WELL-BEING

The practice of mindfulness (moment-to-moment, non-judgemental awareness) is showing growing empirical support as a means of dealing with stress, pain and illness and the talk will explore how you might begin to draw on this ancient practice to enhance your own well-being and capacity to cope with the challenges of daily life. Along with mindfulness, the ability to treat ourselves with the same kindness as we treat our loved ones and dear friends, is a rare commodity in this day and age. Most of us have a harsh inner critic, a tendency toward perfectionism and preference for putting all our energy into caring for others and overlooking ourselves. As we learn on the airplane when the flight attendant tells us to secure the oxygen mask on ourselves before we help the children traveling with us, we need to be self-compassionate if we are to sustain our compassion for others. Being kinder to ourselves is related to a wide range of positive outcomes like greater quality of life, more resilience in the face of difficulty, ability to achieve our goals and make much-needed changes to our behavior. Dr. Hickman will explore these two related topics of mindfulness and self-compassion in an engaging and experiential workshop.

We will have refreshments available. No cost to attend. Free parking.

Please RSVP to Martha by clicking HERE or leave a message at 619-582-1961. Thank you.

We will meet at Alvarado Hospital/Rehab. Institute, 6645 Alvarado Rd., 1st Floor Conf. Room, San Diego, CA 92120. Hospital website: www.alvaradohospital.com

The Green Line Trolley has a stop directly across from the hospital.

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A VERY SPECIAL DONATION TO THE NSDA: “Carl Wagenfuehrer of Lanham, Maryland, who passed away of June 7, 2015 was an avid supporter for spasmodic dysphonia research. Carl was very close friends with Paul Fowler and Jack Owens of San Diego, CA. When Paul was diagnosed with spasmodic dysphonia in 2004, Carl became one of his strongest supporters and wanted to help. Over the years, he made numerous donations and traveled to San Diego over the years to attend multiple Juice Newton Benefit concerts that Paul hosted with Martha Murphy and the Dystonia Support & Advocacy Group of San Diego County. Carl’s biggest contribution came upon his death, when he left a portion of his estate to spasmodic dystonia research. These funds were just recently received and will help to continue the search for a cure for spasmodic dysphonia. Paul shared, ‘He was full of love and gratitude to those special around him. His love and support for all of those affected by spasmodic dysphonia will go on. Carl never lost sight of life and the importance to live each day to its fullest.’ We appreciate Carl’s generous support of our cause!”

ARTICLE ON OUR SUPPORT GROUP & OUR 30 YEAR ANNIVERSARY IN THE SPRING 2017 ISSUE OF THE DYSTONIA DIALOGUE, PAGES 14-15.

https://www.dystonia-foundation.org/images/uploads/DMRF_DD_Spring_2017.pdf

If you shop on AmazonSmile, you can choose the DMRF as your charity and they will receive .5% of your purchases. To find out more, visit https://smile.amazon.com/

$5-CURE-FOR-DYSTONIA CHALLENGE. Please consider participating in this important campaign to raise funds for dystonia research that was created by Jason Dunn (who has generalized dystonia) and his friend Mike Delise. All donations will be directed by the DMRF to dystonia research. Learn more and watch powerful videos by going to www.5dollarcure.com

**IF YOU WOULD LIKE TO ORDER A DVD OF DR. SHARONA BEN-HAIM'S EXCELLENT PRESENTATION ON DEEP BRAIN STIMULATION SURGERY FROM 9/16/17, PLEASE CLICK HERE FOR MORE INFORMATION.

**IF YOU WOULD LIKE TO VIEW DR. DAVID PETERSON'S SLIDE PRESENTATION FROM SAT., 1/21/17 ON DECIPHERING DYSTONIA & THE LATEST IN RESEARCH, CLICK HERE

**DVD's OF DR. STEVEN HICKMAN'S EXCELLENT PRESENTATION ON MINDFULNESS ARE AVAILABLE FOR $10. PLEASE CLICK HERE FOR MORE INFORMATION. YOU CAN ALSO NOW VIEW HIS ENTIRE PRESENTATION ONLINE BY CLICKING HERE

**DVD's OF DAVID WEIL'S INFORMATIONAL PRESENTATION FROM 9/17/16 ON HEALTH INSURANCE, MEDICARE, MEDI-CAL, SUPPLEMENTAL PLANS, ETC. ARE AVAILABLE FOR $10. PLEASE CLICK HERE FOR MORE INFORMATION. YOU CAN ALSO VIEW HIS SLIDE PRESENTATION IN PDF FORM BY CLICKING HERE

***LISTEN TO THE INTERVIEW THAT BILLY McLAUGHLIN & MARTHA DID WITH DREW SCHLOSBERG FOR HIS UT COMMUNITY SPOTLIGHT SHOW ON 9/16/16 BY CLICKING HERE

OUR BENEFIT CONCERT WITH GRAMMY AWARD-WINNING RECORDING ARTIST JUICE NEWTON ON 10/1/15 WAS A SUCCESS! OUR PROCEEDS TOTAL $9,948.00! THESE FUNDS HAVE BEEN EQUALLY DIVIDED BETWEEN THE DMRF & THE NSDA. THANKS TO EVERYONE WHO ATTENDED THE SHOW OR WHO MADE A DONATION AND THANKS TO JUICE NEWTON, HER BAND, PAUL FOWLER & MARTINI'S ABOVE FOURTH! WE HAVE RAISED A GRAND TOTAL OF $44,745.94 FROM THE 4 BENEFITS CONCERTS WE HAVE HELD IN 2006, 2009, 2012 AND 2015!!!

For information, handouts and special offers shared by Cynthia Clark, Clinically Certified Hypnotherapist, Reiki Master & Essential Oils Educator at our meeting on 10/24/15 please click HERE If you would like to order a DVD of her presentation for $10, please click HERE

Check out the article on Medical Uses for Botulinum Toxin in A Woman's Health magazine that Martha was interviewed for at http://awomanshealth.com/beyond-botox/

WE VIDEO-RECORDED 6 RECENT MEETINGS. 1) CYNTHIA CLARK ON HYPNOTHERAPY, REIKI & ESSENTIAL OILS, 2) ROSE THOMAS ON ACUPUNCTURE/PRESSURE POINTS/FOOD/NUTRIENTS; 3) BRENT CESARE, DPT ON AYURVEDA, ENERGY & INTEGRATIVE MEDICINE; 4) JENNIFER LOGAN, YOGA THERAPIST/MEDITATION SPECIALIST; 5) DR. DAVID BARBA, NEUROSURGEON DISCUSSING SURGERIES AND 6) DR. HUSSEIN ABDULHADI, PAIN MANAGEMENT SPECIALIST, DISCUSSING METHODS FOR TREATING PAIN. IF YOU ARE INTERESTED IN PURCHASING A DVD OF ANY OF THESE PRESENTATIONS, WE ASK FOR $10 PER DVD TO COVER OUR COSTS. PLEASE CLICK HERE TO CONTACT US FOR MORE INFORMATION.