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Our Group is affiliated with the DMRF. Click their logo on the left to go to their site. Our group is also affiliated with the NSDA. Click their logo on the right to go to their website.

Dystonia Support & Advocacy Group of San Diego County
 

Hello and welcome to the Dystonia Support Group of San Diego County's Web Site. This site will tell you more about our group, upcoming meetings, symposiums, and current events. To navigate this site the links are in categories to help to make it more organized. We hope you enjoy our web site made possible by Ryan Murphy.

 

Visit us on Facebook at www.facebook.com/dystoniaofsandiego
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For the latest news and information including actress Selma Blair going public with living with MS and Spasmodic Dysphonia please click here to go to our announcements page. Both UCI and USC are enrolling Cervical Dystonia patients for a Revance study using a new botulinum toxin Type A. Also ASPEN is conducting a clinical trial for a new botulinum toxin DAXI. See the Research Studies page for all the information or click here. To view Dr. Fatta Nahab's PowerPoint presentation from our meeting on 4/29/17, please click HERE

 

Thanks to everyone who participated in and supported our first-ever DYSTONIA DAY AT THE SAN DIEGO ZOO on Sat., 11/3/18! We raised $20,608.50!!!


 

DATE: SAT., MAY 18, 2019 TIME: 1:00-3:00 P.M.

SPEAKER: MARK WALLACE, M.D., Professor of Clinical Anesthesiology and the Chair, Division of Pain Medicine in the Department of Anesthesiology, UCSD School of Medicine. He is currently in his sixth year on the Board of Directors for the American Pain Society and has served on numerous committees for national and international pain societies.  He is the recipient of numerous awards including the Award for Excellence in Clinical Care, San Diego’s Top Doctor in Pain Medicine for 8 years in a row, American Pain Society Center of Excellence Award, and the Leonard Tow Humanism in Medicine Award.  Dr. Wallace has authored and co-authored more than 300 articles, abstracts, books, and book chapters concerning pain research and management, including research on the use of medical cannabis to treat pain. 

TOPIC: "THE SCIENCE, MEDICINE AND POLITICS OF MEDICAL CANNABIS TO TREAT CHRONIC PAIN"

Please RSVP to Martha by clicking HERE or leave a message at 619-582-1961. Thank you.

We will meet at Alvarado Hospital/Rehab. Institute, 6645 Alvarado Rd., 1st Floor Conf. Room, San Diego, CA 92120. Hospital website: www.alvaradohospital.com

The Green Line Trolley has a stop directly across from the hospital.

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To view Dr. Steven Hickman's excellent presentation to our group from 9/15/18 on MINDFULNESS, SELF-COMPASSION & YOUR OWN WELL-BEING click HERE He also provided a 16-page handout and, if you would like a copy e-mailed to you, please contact Martha HERE And if you would like to purchase a DVD of his presentation for $10, please e-mail Martha HERE

ARTICLE ON OUR SUPPORT GROUP & OUR 30 YEAR ANNIVERSARY IN THE SPRING 2017 ISSUE OF THE DYSTONIA DIALOGUE, PAGES 14-15.

https://www.dystonia-foundation.org/images/uploads/DMRF_DD_Spring_2017.pdf

If you shop on AmazonSmile, you can choose the DMRF as your charity and they will receive .5% of your purchases. To find out more, visit https://smile.amazon.com/

$5-CURE-FOR-DYSTONIA CHALLENGE. Please consider participating in this important campaign to raise funds for dystonia research that was created by Jason Dunn (who has generalized dystonia) and his friend Mike Delise. All donations will be directed by the DMRF to dystonia research. Learn more and watch powerful videos by going to www.5dollarcure.com

**IF YOU WOULD LIKE TO ORDER A DVD OF DR. SHARONA BEN-HAIM'S EXCELLENT PRESENTATION ON DEEP BRAIN STIMULATION SURGERY FROM 9/16/17, PLEASE CLICK HERE FOR MORE INFORMATION.

**IF YOU WOULD LIKE TO VIEW DR. DAVID PETERSON'S SLIDE PRESENTATION FROM SAT., 1/21/17 ON DECIPHERING DYSTONIA & THE LATEST IN RESEARCH, CLICK HERE

**DVD's OF DR. STEVEN HICKMAN'S EXCELLENT PRESENTATION ON MINDFULNESS ARE AVAILABLE FOR $10. PLEASE CLICK HERE FOR MORE INFORMATION. YOU CAN ALSO NOW VIEW HIS ENTIRE PRESENTATION ONLINE BY CLICKING HERE

**DVD's OF DAVID WEIL'S INFORMATIONAL PRESENTATION FROM 9/17/16 ON HEALTH INSURANCE, MEDICARE, MEDI-CAL, SUPPLEMENTAL PLANS, ETC. ARE AVAILABLE FOR $10. PLEASE CLICK HERE FOR MORE INFORMATION. YOU CAN ALSO VIEW HIS SLIDE PRESENTATION IN PDF FORM BY CLICKING HERE

***LISTEN TO THE INTERVIEW THAT BILLY McLAUGHLIN & MARTHA DID WITH DREW SCHLOSBERG FOR HIS UT COMMUNITY SPOTLIGHT SHOW ON 9/16/16 BY CLICKING HERE

OUR BENEFIT CONCERT WITH GRAMMY AWARD-WINNING RECORDING ARTIST JUICE NEWTON ON 10/1/15 WAS A SUCCESS! OUR PROCEEDS TOTAL $9,948.00! THESE FUNDS HAVE BEEN EQUALLY DIVIDED BETWEEN THE DMRF & THE NSDA. THANKS TO EVERYONE WHO ATTENDED THE SHOW OR WHO MADE A DONATION AND THANKS TO JUICE NEWTON, HER BAND, PAUL FOWLER & MARTINI'S ABOVE FOURTH! WE HAVE RAISED A GRAND TOTAL OF $44,745.94 FROM THE 4 BENEFITS CONCERTS WE HAVE HELD IN 2006, 2009, 2012 AND 2015!!!

For information, handouts and special offers shared by Cynthia Clark, Clinically Certified Hypnotherapist, Reiki Master & Essential Oils Educator at our meeting on 10/24/15 please click HERE If you would like to order a DVD of her presentation for $10, please click HERE

Check out the article on Medical Uses for Botulinum Toxin in A Woman's Health magazine that Martha was interviewed for at http://awomanshealth.com/beyond-botox/

WE VIDEO-RECORDED 6 RECENT MEETINGS. 1) CYNTHIA CLARK ON HYPNOTHERAPY, REIKI & ESSENTIAL OILS, 2) ROSE THOMAS ON ACUPUNCTURE/PRESSURE POINTS/FOOD/NUTRIENTS; 3) BRENT CESARE, DPT ON AYURVEDA, ENERGY & INTEGRATIVE MEDICINE; 4) JENNIFER LOGAN, YOGA THERAPIST/MEDITATION SPECIALIST; 5) DR. DAVID BARBA, NEUROSURGEON DISCUSSING SURGERIES AND 6) DR. HUSSEIN ABDULHADI, PAIN MANAGEMENT SPECIALIST, DISCUSSING METHODS FOR TREATING PAIN. IF YOU ARE INTERESTED IN PURCHASING A DVD OF ANY OF THESE PRESENTATIONS, WE ASK FOR $10 PER DVD TO COVER OUR COSTS. PLEASE CLICK HERE TO CONTACT US FOR MORE INFORMATION.